Epidermolysis bullosa (EB) is the term given to a group ... EBS Dowling-Meara is a form of the disease with neonatal widespread blistering progressing to blistering in characteristic clusters.
STATEN ISLAND, N.Y. — A fundraising Polar Plunge to honor John Hudson Dilgen will take place this month in South Beach to ...
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Girl with rare skin disease excited to go to secondary schoolAhead of Rare Disease Day on Friday, Debra, the national charity for EB, is highlighting how routine steps in life are huge leaps for people living with the painful condition. “Casey is excited ...
As part of the new initiative, the Mariners and Padres will make donations to EB Research Partnership, a non-profit ...
Professor Järvinen and his team's discovery holds great promise for EB patients worldwide. At Theravia, we are committed to addressing rare and neglected diseases such as EB, described by Debra ...
The European Medicines Agency’s (EMA) human medicines committee has recommended Krystal Biotech’s Vyjuvek (beremagene ...
The ministry of health will provide services to patients who are suffering from hard-to-treat and rare diseases during the ...
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